Nelli^® for Patients

• How does Nelli^® work?

  Nelli^® is an audio-video recording system for the detection and quantification of movement during periods of rest.

• Where is my information stored?

  Raw media data (audio/video) is temporarily stored in an encrypted format on the PRU (Personal Recording Unit), where it is pre-processed to extract only periods likely to contain clinically relevant activity. Data is transmitted via a secure internet connection to Nelli^® software running on a remote server.

• How is my data protected?

  Nelli^® stores and processes protected health information and is designed to protect this information at every level. Nelli^® records, processes, and provides secure access to audio/video (raw media) recordings of patients to clinical professionals. Throughout the process the data is held securely, protected, and not shared with any external parties.

• Does the recording unit need to be connected to the internet by WIFI or cable?

  No, the PRU is connected automatically to the internet via a built-in modem.

• Who will see the video?

  Assigned experts of Neuro Event Labs are allowed to access the data, review the recordings. Findings are available for your treating healthcare professionals.

• Is the camera on all the time?

  In a home environment, the PRU is manually controlled by the patient or caregiver. In a hospital environment, the PRU automatically starts and stops recording based on a schedule set by the hospital staff.

• Should I try to start recording if I feel a seizure coming?

  Yes, it would be recommended if possible.

• Is the camera noisy?

  No, but it may produce a soft whirring sound, similar to a quiet laptop.

• Do I need to wear anything special?

  No, a Nelli^® recording does not require any wearables on the patient.

• Can I leave the room, for example to go to the toilet during the recording?

  Yes, absolutely. The system has been developed so that it does not interfere with daily activities.